Necrotizing Enterocolitis (NEC) Resources

General Information

• FamilyDoctor.org
  This website is sponsored by the American Academy of Family Physicians. It contains information about many conditions, for all ages, from newborns to seniors. Its Primer on Preemies contains information about the specific needs of infants born prematurely.
• KidsHealth.org
  The Nemours Foundation sponsors this website, which contains health information for parents, for kids, and for teens. The article “About NEC” provides an entry-level but thorough review of the condition.
• Lucile Packard Children’s Hospital
  The hospital website’s article “Necrotizing Enterocolitis” offers a succinct but detailed review of the disease.
• National Library of Medicine (NLM)
  • MedlinePlus, a service of the NLM, also provides an article on NEC.
  • The PubMed Health article on NEC is available as a service of the NLM and is part of the A.D.A.M. Medical Encyclopedia, which is accredited by the American Accreditation HealthCare Commission.

Services, Resources, and Support

• Society for Maternal-Fetal Medicine
  The society is dedicated to improving the outcomes of pregnancy by advancing the science and practice of obstetric care through education of physicians and patients and through research. The society offers a physician finder and consumer information. The society and the Society for Maternal-Fetal Medicine Foundation constitute both a professional association and a source of information for health care consumers.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

• Neonatal Research Network (NRN)
  The NICHD-supported NRN, funded by the Pregnancy and Perinatology Branch, is a network of academic centers that combine efforts to answer critical research questions pertaining to the advancement of neonatal care more quickly than any one center could alone.
  • The NRN Extremely Preterm Birth Outcomes Data uses data from NRN studies to help health care providers estimate possible outcomes for these infants. This information is not intended to predict an outcome for a specific infant.
  • The NRN website provides information about the network, including sites and principal investigators at those sites, and offers a variety of tools and links as well as an up-to-date list of publications and ongoing clinical studies.
• American Academy of Pediatrics
  The academy provides a wide array of information for health care providers, including a searchable database of presentations at its national meetings. In addition, several academy committees address issues related to NEC:
  • Committee on Fetus and Newborn
  • Section on Surgery
  • Section on Gastroenterology, Hepatology, and Nutrition
• American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)
  The society published Clinical Guidelines: Nutrition Support for Neonatal Patients at Risk for NEC, which provides recommendations on feeding for infants at high risk for NEC.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.