News & Updates

The American Congress of Obstetricians and Gynecologists (ACOG) and the Society for Maternal-Fetal Medicine (SMFM) announced that they are recommending the use of the label "term" in pregnancy be replaced by new gestational age designations.

A new policy has been posted on the NIH Web site that provides information for the extramural community on how NIH is resuming operations after the government shutdown.

In 1994, the NICHD, the American Academy of Pediatrics (AAP) and other collaborators launched the Back to Sleep campaign to inform parents and caregivers about ways to reduce the risk of Sudden Infant Death Syndrome (SIDS), defined as the sudden, unexplained death of an infant younger than 1 year of age.

Researchers at the National Institutes of Health have identified a potential new drug that could help in the treatment of a form of Batten disease, a fatal childhood disorder. The researchers tested the drug in mice with the disease and found that it slowed the loss of coordination seen in the disorder, and extended the animals’ life span.

In this Research Conversation, Drs. Marian Willinger and Eve Colson explain the findings reported in the NIH news release, Roughly 14 percent of infants share bed with adult or child. Sharing a bed, with an adult or another child, increases an infant’s risk of death from sudden infant death syndrome, or SIDS or other sleep-related causes.

The percentage of nighttime caregivers who reported that an infant usually shares a bed with a parent, another adult, or a child more than doubled between 1993 and 2010, according to researchers at the National Institutes of Health and other institutions.

Reducing infant mortality has been an important part of the NICHD mission since it was founded. Despite decades of research, however, Sudden Infant Death Syndrome (SIDS) remains the leading cause of death among infants between 1 month and 1 year of age in the United States, causing more than 2,000 infant deaths each year.

In recognition of National Infant Mortality Awareness Month, the federal agencies focused on infant health and safety, ask all organizations who reach families and health care providers through media, print, and education to show infants sleeping alone, on their backs, and in a clutter-free crib, bassinet, or play yard.

The September NICHD Research Perspectives featured a discussion on NIH grants for projects investigating genomic sequencing as a diagnostic tool to screen newborns for health disorders. On September 4, the NICHD and the National Human Genome Research Institute (NHGRI) awarded $5 million to fund studies on the potential for the new technology. The September podcast is an excerpt from the news conference in which officials at the NICHD and NHGRI described this new project.

The NICHD has played a key role in the newborn screening activities and accomplishments of the last 5 decades and continues to lead and fund research activities related to newborn screening. As we mark the 50th anniversary of the dawn of the newborn screening era, the NICHD highlights some of its newborn screening research and accomplishments.

The NICHD and its collaborators in American Indian/Alaska Native (AI/AN) communities recently released a packet of tailored training materials and activities intended to help spread safe infant sleep messages in Native communities.

What was formerly known as NICHD’s Division of Epidemiology, Statistics, and Prevention Research (DESPR) has been reorganized and is now known as the Division of Intramural Population Health Research.

Understanding Down syndrome—its mechanisms, its effects on overall health, and ways to minimize its symptoms—has been an important part of the NICHD mission since it was established. The Institute is launching the DS-Connect®: The Down Syndrome Registry in an effort to create a centralized, secure national resource for storing and sharing health information about Down syndrome.

The National Institutes of Health has launched DS-Connect, a Web-based health registry that will serve as a national health resource for people with Down syndrome and their families, researchers, and health care providers.

Can sequencing of newborns’ genomes provide useful medical information beyond what current newborn screening already provides? Pilot projects to examine this important question are being funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and the National Human Genome Research Institute (NHGRI), both parts of the National Institutes of Health.

More than 65 percent of HIV-infected youth had mild to moderate impairments in fine-motor skills, memory, and other cognitive skills, although not enough to affect day-to-day functioning for most, according to a National Institutes of Health network study.

This month’s NICHD Research Perspectives podcast focuses on adrenal gland disorders and research conducted by NICHD staff at the NIH Clinical Center.

A variety of factors can make it difficult for women to maintain a healthy weight during pregnancy. But recent NICHD supported research affirms the importance of not gaining too much weight during pregnancy to reduce the risk for complications.

In this Research Conversation, NICHD’s Dr. John Ilekis interviewed NICHD grantees Yoel Sadovsky and Dr. Carolyn coin about their discovery that cells of the placenta secrete tiny, balloon like structures called vesicles.

For this research conversation, NICHD’s Dr. Tonse Raju spoke with grantee Dr. Virender Rehan on his study of rats given nicotine during their pregnancies.