Traumatic Brain Injury (TBI) Resources

• NICHD
  • NICHD provides resources related to TBI (PDF 48 KB).
  • NICHD produced a video and infographic on TBI in kids.
• Administration for Community Living (ACL)
  This agency, within HHS, helps older Americans and people with disabilities get access to community supports.
• Centers for Disease Control and Prevention (CDC)
  • HEADS UP is a brain injury awareness campaign that provides videos, concussion training courses for parents and coaches, and other educational materials.
  • Preventing Shaken Baby Syndrome is a guide for health departments and community-based organizations.
  • Traumatic Brain Injury & Concussion has information on causes and effects of TBI and ways to prevent TBI.
• National Institute of Neurological Disorders and Stroke (NINDS)
  NINDS’s Traumatic Brain Injury information page and Hope Through Research page (en español) cover treatment, prognosis, and research.
• National Library of Medicine
  The MedlinePlus page Traumatic Brain Injury provides basic information on TBI and links to more resources.
• National Center on Health, Physical Activity, and Disability (NCHPAD)
  The center maintains a directory of programs accessible to people with disabilities.
• National Rehabilitation Information Center (NARIC)
  NARIC collects and disseminates articles and other publications resulting from National Institute on Disability, Independent Living, and Rehabilitation Research–funded research.
• Office of Special Education and Rehabilitative Services
  This office, within the U.S. Department of Education, provides information about special education services for children with disabilities, including disabilities from TBI.
• Academy of Cognitive and Behavioral Therapies
  The academy provides FAQs on cognitive therapy and can help you find a therapist in your area.
• American Academy of Physical Medicine and Rehabilitation (AAPM&R)
  AAPM&R is a national society of specialists in physical medicine and rehabilitation.
• American Occupational Therapy Association, Inc. (AOTA)
  AOTA offers resources for practitioners, educators, students, caregivers, and patients.
• American Physical Therapy Association (APTA)
  APTA works to advance physical therapy practice and research and increase understanding of physical therapy.
• American Speech-Language-Hearing Association (ASHA)
  ASHA offers resources for the public on hearing, balance, speech, language, and swallowing.
• Brain Injury Association of America (BIAA)
  • The association provides FAQs about brain injury address research, rehabilitation, financial assistance, and more.
  • The website also includes Personal Stories from people affected by TBIs.
• Brain Trauma Foundation
  The foundation offers educational resources, including videos and FAQs, on concussion and other forms of TBI.
• Center for Parent Information and Resources
  The center’s information on TBI includes a webinar on school planning and educational strategies following TBI and tips for parents and teachers (en español ).
• National Resource Center for TBI
  The resource center provides articles and FAQs for people with TBI and their families.
• U.S. Social Security Administration
  This agency offers information related to disabilities, including TBI, and disability benefits.
• U.S. Department of Veterans Affairs (VA)
  The VA provides information about TBI through the Veterans Health Library.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

NICHD Resources

• National Center for Medical Rehabilitation Research (NCMRR)
  NCMRR fosters the development of scientific knowledge to enhance the health and quality of life of people with disabilities, including TBI and related conditions. NCMRR also coordinates rehabilitation research and activities across NIH, including leading the revision in 2021 of the NIH Research Plan on Rehabilitation (PDF 1.51 MB), which addresses TBI.
• Pediatric Trauma and Critical Illness Branch (PTCIB), Division of Extramural Research
  PTCIB supports research on care of critically ill and injured children, including those with TBI, in emergency departments and pediatric intensive care units.
• Section on Quantitative Imaging and Tissue Sciences, Division of Intramural Research (DIR)
  The Section invents, develops, and implements novel quantitative in vivo methods for imaging tissues and organs, including the brain, to evaluate TBI and its effects. For more information about this work, read the Section’s description in the DIR’s 2019 annual report.

Other Resources

• American Academy of Pediatrics (AAP)
  • AAP outlines the history of shaken baby syndrome and offers recommendations for healthcare providers.
  • AAP Consensus Statement: Abusive Head Trauma in Infants and Young Children
• American College of Surgeons Consensus Statement on Concussion and Brain Injury
• American Congress of Rehabilitation Medicine (ACRM)
  ACRM is an organization of rehabilitation professionals who work with people with disabling conditions. It assists researchers in improving their investigations and disseminating findings, educates providers to deliver best practices, and promotes other goals of rehabilitation professionals. It includes a Brain Injury Interdisciplinary Special Interest Group , which focuses on brain injury-related research and activities, and brain injury resources for professionals .
• Centers for Disease Control and Prevention (CDC)
  CDC maintains many resources for research, education, and training on the topic of TBI:
  • TBI information for providers
  • HEADS UP information for providers
  • National Concussion Surveillance System
• Center for Neuroscience and Regenerative Medicine (CNRM)
  This U.S. Department of Defense–funded collaboration between NIH and the Uniformed Services University of the Health Sciences has allowed the NIH Clinical Center to acquire technology that combines positron emission tomography (PET) and magnetic resonance imaging (MRI), allowing researchers to diagnose and treat TBI and other brain disorders among military service members and civilians more quickly and effectively.
• Health.mil
  This collaboratively funded website offers information specific to members of the military, including information on TBI.
• National Academies of Sciences, Engineering, and Medicine
  In 2008, the National Academies issued the Long-Term Consequences of Traumatic Brain Injury as part of its Gulf War and Health series . The report assesses the possible long-term health outcomes of TBI, including neurologic, endocrine, and psychological effects.
• National Institute of Neurological Diseases and Stroke (NINDS)
  NINDS leads TBI-related research at NIH. NINDS’s work includes an initiative to gain consensus on a common set of data elements, including variable definitions and recommended measures, for TBI and other topics.
  • Common data elements for TBI
  • NINDS TBI research
• National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
  NIDILRR is in HHS’s Administration for Community Living. NIDILRR provides an array of grants and other funding opportunities to serve individuals with disabilities and their families, including those with TBI.
• NIH Consensus Development Conference on Rehabilitation of Persons with Traumatic Brain Injury
  Resulting from a conference held in 1998, this NIH report includes the recommendations of an independent panel for effective rehabilitation of people who have sustained a TBI. This publication has not been updated since it was published and is provided for reference only.
• NIH Brain Research through Advancing Innovative Neurotechnologies® (BRAIN) Initiative
  The BRAIN Initiative seeks to develop new technologies and tools to better understand the human brain. Ultimately, the initiative will provide insights needed to treat high-priority conditions such as TBI.
• Pediatric Trauma Society
  The society offers a compilation of treatment guidelines for clinicians .
• U.S. Department of Veterans Affairs (VA)
  The VA promotes advances in understanding, diagnosing, and treating TBI through several ongoing studies and projects. Learn more.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.