Endometriosis Resources

• American College of Obstetricians and Gynecologists (ACOG)
  ACOG is the nation’s leading group of obstetricians and gynecologists (OB/GYNs) and other professionals providing healthcare for women.
  • Find an OB/GYN
  • FAQ: Endometriosis
• American Society for Reproductive Medicine (ASRM)
  The ASRM is devoted to advancing knowledge and expertise in reproductive medicine and biology. The organization also hosts a website for patient and consumer information .
  • Endometriosis: A Guide for Patients
• Endometriosis Association (EA)
  The EA provides educational literature and support services and funds research on endometriosis, on the development of endometriosis, and treatments for the condition.
  • EA educational brochures are available in more than 25 languages.
• Endometriosis.org
  Endometriosis.org is a global forum for news and information pertaining to medical treatments, surgical treatments, and emotional support for women who have endometriosis.
• Endometriosis Research Center (ERC)
  The ERC facilitates international endometriosis awareness, advocacy, support, education, legislative efforts and supports research on endometriosis.
• MedlinePlus^®
  MedlinePlus^® is a service of the National Library of Medicine that compiles information about diseases, conditions, and wellness issues in plain language from NIH and other trusted sources.
  • Endometriosis
• Womenshealth.gov
  The HHS Office on Women’s Health promotes health equity for women and disseminates health information on topics that are of interest for women.
  • Endometriosis fact sheet (PDF 169 KB)

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

• NICHD Resources
  • Division of Population Health Research (DiPHR)
    • Endometriosis: Natural History, Diagnosis, and Outcomes (ENDO) Study
    • Visit the About DiPHR webpage to access the division’s annual reports, which include descriptions of the ENDO study and other DiPHR research on endometriosis.
  • Fertility and Infertility Branch (FIB) 
    FIB supports research on various aspects of endometriosis, including the projects described in “High-tech analysis of genetic data may yield a new test for endometriosis.”
  • Gynecologic Health and Disease Branch (GHDB)
    • GHDB’s Scientific Vision (PDF 1.6 MB)
  • Human Endometrial Tissue and DNA Bank
    The goal of this tissue bank is to serve as an evolving bioinformatics resource on genes associated with the uterus.
• American College of Obstetricians and Gynecologists (ACOG)
  ACOG provides resources and publications for healthcare providers on current standards in practice on gynecological and obstetrical topics.
  • Practice Bulletin Number 114, dated July 2010 and reaffirmed in 2018: Management of Endometriosis .
  • Diagnosis of Abnormal Uterine Bleeding in Reproductive-Aged Women (July 2012, reaffirmed 2016)
  • Noncontraceptive Uses of Hormonal Contraceptives (January 2010, reaffirmed 2018)
  • Endometrial Ablation (May 2007, reaffirmed 2018)
  • Dysmenorrhea and Endometriosis in the Adolescent (November 20, 2018)
  • Management of Acute Abnormal Uterine Bleeding in Nonpregnant Reproductive-Aged Women (April 2013, reaffirmed 2019)
• American Society for Reproductive Medicine (ASRM)
  • ASRM’s Endometriosis Special Interest Group promotes interest in the biology, pathophysiology, and clinical management of endometriosis through research and education of healthcare providers.
  • ASRM also offers other information for healthcare providers related to endometriosis.
• International Society for Gynecological Endoscopy (ISGE)
  ISGE disseminates knowledge and expertise in gynecologic endoscopy.
• Society of Gynecological Surgeons (SGS)
  SGS is a select group of physicians involved in teaching and practice of gynecologic surgery. Meetings are held annually to discuss papers based on research of gynecologic surgery.
• World Endometriosis Society (WES)
  WES promotes the exchange of clinical and scientific knowledge among investigators committed to advancing the understanding of endometriosis to improve treatments and quality of life for women with the disease. WES is affiliated with the World Endometriosis Research Foundation , which fosters research into endometriosis to improve knowledge and treatments for this disorder.
  • In 2013, the World Endometriosis Society Montpellier Consortium published the first-ever worldwide consensus statement on the management of endometriosis. The statement, published in the journal Human Reproduction, addresses 69 issues related to the management of endometriosis.
  • In 2017, the WES published a consensus on the classification of endometriosis in Human Reproduction.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.