Adrenal Gland Disorder Resources

• Cushing's Support and Research Foundation (CSRF) 
  CSRF's mission is to provide information and support for Cushing's disease and Cushing's syndrome patients and their families; to increase awareness in the medical community and the general public about Cushing's disease and Cushing's syndrome; and to be a resource for information and support to health care professionals.
  • The CSRF Cushing's Fact Sheet  provides information on causes, symptoms, diagnosis, treatment, and research.
• EndocrineWeb 
  EndocrineWeb's goal is to provide patients with accurate and current information about endocrine disorders. In straightforward language, it explains the causes and symptoms of these disorders and how they can be treated.
• GIST Support International 
  This all-volunteer group includes patients with gastrointestinal stromal tumor (GIST) cancer, family members, friends, and interested professionals. The e-mail distribution list has 1,500 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.
• Hormone Health Network: Adrenal Disorders 
  This page links to fact sheets and patient guides about adrenal incidentaloma, primary aldosteronism, Cushing syndrome, adrenal insufficiency, and congenital adrenal hyperplasia.
• MAGIC Foundation 
  This nonprofit organization provides support services for families of children with a variety of endocrine disorders, including adrenal and pituitary disorders and Cushing's syndrome.
• MedlinePlus, National Library of Medicine: Adrenal Gland Cancer
  This page contains information on types of tumors, diagnosis, treatment, and more.
• MedlinePlus, National Library of Medicine: Adrenal Gland Disorders
  This page gives information on causes, symptoms, diagnosis, treatment, and more.
• National Adrenal Diseases Foundation 
  The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
• National Institute of Diabetes and Digestive and Kidney Diseases National Endocrine and Metabolic Diseases Information Center
  • The Adrenal Insufficiency and Addison's Disease fact sheet provides information about symptoms, diagnosis, treatment, and more on adrenal insufficiency, Addison's disease, and adrenal crisis.
  • The Cushing's Syndrome fact sheet provides information on signs and symptoms, causes, diagnosis, treatment, and clinical trials.
• New York Times Health Guide: Pituitary Tumor 
  This pages covers causes, symptoms, treatments, exams, and support groups for pituitary tumors.
• OncoLink: All About Adrenal Cancer 
  This page, from a website of the Abramson Cancer Center at the University of Pennsylvania, talks about adrenal cancer causes, testing, signs, and diagnosis.
• Pediatric GIST 
  This nonprofit organization provides support—through information, education, and innovative research—to pediatric patients with GIST and their families. The group's website includes a Carney's Triad section page with extensive information on the Carney triad and links to published studies.
• University of Virginia School of Medicine. Pituitary Tumor: Frequently Asked Questions 
  This page discusses the types, causes, treatments, tests, and complications associated with pituitary tumors.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

• 2015 Annual Report of the NICHD Division of Intramural Research
  This report highlights NICHD's research on adrenal gland disorders, including research by the Section on Genetics and Endocrinology, the Section on Medical Neuroendocrinology, the Unit on Reproductive Endocrinology and Infertility, the Section on Clinical Genomics, and the Program on Developmental Endocrinology and Genetics.
• NICHD Division of Extramural Research (DER)
  DER also supports research on adrenal gland disorders through the Pediatric Growth and Nutrition Branch and the Developmental Biology and Congenital Anomalies Branch.
• The Pediatric Endocrinology Training Program is a 3-year program accredited by the Accreditation Council for Graduate Medical Education. It provides comprehensive training in clinical patient management and guidance in the development of research skills. The fellowship is at NICHD and based at the NIH Clinical Center, which maintains clinical research protocols investigating the treatment of adrenal and pituitary tumors, Cushing's syndrome, obesity, and other conditions.
• American Association of Clinical Endocrinologists 
  AACE is a professional community of physicians specializing in endocrinology, diabetes, and metabolism committed to enhancing the ability of its members to provide the highest quality of patient care.
• Endocrine Fellows Foundation 
  This nonprofit organization's mission is to foster the advancement of fellows in endocrinology, diabetes, and metabolism through mentoring, education, research funding, and career support.
• OncoLink 
  This website, maintained by the Abramson Cancer Center of the University of Pennsylvania, gives cancer patients, families, health care providers, and the general public cancer-related information at no charge. Resources include comprehensive information about specific types of cancer, updates on cancer treatments and clinical trials, and links to supportive services.
• Young Active Research in Endocrinology 
  This organization works to increase the mutual exchange between young scientists in the initial stages of their careers, with the goal of improving communication and collaboration.
• The Endocrine Society 
  The Endocrine Society works to foster a greater understanding of endocrinology among the general public and practitioners of complementary medical disciplines and to promote the interests of all endocrinologists at the national scientific research and health policy levels of government.
• Pediatric Endocrinology Nursing Society(PENS) 
  PENS is a voluntary nonprofit specialty organization committed to providing support and education to nurses and other health care providers caring for pediatric endocrine patients and to promoting collaboration and research between health professionals in the area of pediatric endocrinology.
• Pediatric Endocrine Society 
  The Pediatric Endocrine Society is dedicated to the advancement of care of children and adolescents with endocrine disorders and the promotion of professional standards and education for physicians who care for children and adolescents with endocrine disorders.
• GIST Support International 
  The GIST Support International website includes information on GIST clinical trials .

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.