Common Data Elements (CDEs) for COVID-19 and Post-Acute Sequelae of SARS-CoV-2 Infection (PASC) in Pregnancy, Lactation, and Pediatrics Research

November 1, 2022 (2:30-3:30 p.m.)

Sponsor/Co-Sponsor(s)

NICHD; National Institute of Environmental Health Sciences

Location

Virtual; registration is free but required

Purpose

In 2020 and 2021, NICHD made recommendations on the use of CDEs to promote data harmonization in studies of COVID-19, including research on PASC, in pregnant, lactating, and pediatric populations. During this webinar, participants will review the CDEs for studying COVID-19 and PASC and will learn how to access them through the Disaster Research Response (DR2) Resources Portal, managed by National Institute of Environmental Health Sciences (NIEHS), and the Research Electronic Data Capture (REDCap) Shared Library external link. View NOT-HD-22-047 for details.

This webinar will include a:

  • Live demonstration of accessing the CDEs on the DR2 platform and the REDCap Shared Library
  • Question-and-answer period with representatives from the pregnancy and pediatric COVID-19/PASC CDE working groups and DR2 experts

This webinar is optional; participation is not required to apply for funding consideration. However, all prospective applicants and researchers interested in using these CDEs in their work are invited to attend.

Investigators applying to the Notices of Special Interest (NOSIs) NOT-HD-22-002 and NOT-HD-22-003, both related to COVID and pregnancy and/or pediatrics, are strongly encouragedto utilize the CDEs available via the DR2 Resources Portal in their data collection. Applicants who choose not to include the CDEs in their projects for these NOSIs will be required to provide a clear rationale for their choice not to do so, and an explanation of what data elements they will use instead.

Individuals who need any reasonable accommodations to participate in this activity should contact Robert Tamburro at robert.tamburro@nih.gov or 301-480-2619 at least 5 days in advance.

More Information

Register to attend external link

Contacts

Dr. Caroline Signore, Division of Extramural Research (DER), NICHD
Email: signorec@mail.nih.gov
Phone: 301-496-5577

Dr. Robert Tamburro, DER, NICHD
Email: robert.tamburro@nih.gov
Phone: 301-480-2619

Please note: Views expressed during NICHD-sponsored events do not necessarily reflect the opinions or the official positions of NICHD, NIH, or HHS.
top of page BACK TO TOP