Report of the NIH Consensus Development Conference on Phenylketonuria (PKU): Screening and Management
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Contents
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Introduction to the NIH Consensus Development Conference on Phenylketonuria (PKU) Screening and Management (next)
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NIH Consensus Statement
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Consensus Development Panel
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Speakers
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Planning Committee
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Abstracts
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Report of the Consensus Development Panel
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Appendix A
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Appendix B
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A Fifteen Year Follow-up on Participants in the Collaborative Study of Children Treated for Phenylketonuria (PKUCS 1967-1984)R. Koch, B. Burton, J. Coldwell, Richard Erbe, M. Geraghty, G. Hoganson, R. Peterson, W. Rhead, R. Rouse, R. Scott, C. Shear, Janet Thomas, J. Wolff, A. Stern, and C. Azen
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Appendix B – Charts and Figures
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Appendix C
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Appendix D
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Appendix E
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Survey of States: Summary of Response by 40 States on Mandates for Coverage of Foods and Formula, Availability of Subspecialty Services and Enforcement of HIPPA Michele A. Lloyd-Puryear and Coalition of State Genetics Coordinators (last)
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Last Updated Date: 08/28/2006