NICHD News Releases

March Is Trisomy Awareness Month
The term “trisomy” refers to conditions characterized by having 3 copies of a chromosome, instead of the usual 2-copy pair. An extra chromosome causes health problems ranging from mild intellectual and developmental disability, to severe physical problems. During Trisomy Awareness Month, the NICHD highlights the important role research plays in helping families and patients address challenges associated with trisomy conditions, such as Down syndrome.

Scientific Vision: The Next Decade
The NICHD embarked upon a collaborative process in 2011 to create a scientific Vision, identifying the most promising scientific opportunities for the Institute and its partners to pursue over the next decade. The newly published Scientific Vision statement presents the results of that process and outlines scientific goals for the coming decade.

NICHD reorganizes extramural program
​Alan Guttmacher, M.D., Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) announced a number of changes to streamline the institute’s organizational structure and accelerate the exchange of scientific ideas.

NICHD vision statement now available online
A document charting a research course for the many collaborators who share an interest in promoting the science concerning human development through the life span, child health, women's health, and rehabilitation research is now available online.

Research for a Lifetime: Commemorating the NICHD’s 50th Anniversary
On October 17, 1962, President John F. Kennedy signed into law the legislation establishing the NICHD to examine “the complex process of human development from conception to old age.” The Institute marks its golden anniversary with Research for a Lifetime, an all-day scientific colloquium to highlight the Institute’s mission, accomplishments, and future research directions.

Prenatal intervention reduces learning deficit in mice
​Mice with a condition that serves as a laboratory model for Down syndrome perform better on memory and learning tasks as adults if they were treated before birth with neuroprotective peptides, according to researchers at the National Institutes of Health.

NIH establishes Down syndrome patient registry
​A new Down syndrome patient registry will facilitate contacts and information sharing among families, patients, researchers and parent groups. The National Institutes of Health has awarded a contract to PatientCrossroads to operate the registry. The company has created patient-centric registries for muscular dystrophy and many rare disorders.

NIH Study Shows Caffeine Consumption Linked to Estrogen Changes
Asian women who consumed an average of 200 milligrams or more of caffeine a day--the equivalent of roughly two cups of coffee--had elevated estrogen levels when compared to women who consumed less, according to a study of reproductive age women by researchers at the National Institutes of Health and other institutions.

Vitamin D May Improve Bone Health in those Taking Anti-HIV Drug
Vitamin D may help prevent hormonal changes that can lead to bone loss among those being treated for HIV with the drug tenofovir, according to the results of a National Institutes of Health network study of adolescents with HIV.

Study of Youth to Seek Origins of Heart Disease Among African-Americans
Researchers supported by the National Institutes of Health are undertaking a preliminary study to identify the early origins of heart disease among African-Americans. The new feasibility study will enroll children and grand children of participants taking part in the largest study of heart disease risk factors among African-American adults, the Jackson Heart Study (JHS), in Jackson, Miss.

Down Syndrome Consortium Formed
The National Institutes of Health has joined with organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition.

Very Low Birthweight Down Syndrome Infants at High Risk For Heart, Lung Disorders
Very low birthweight Down syndrome infants are at higher risk for disorders of the heart and lungs than are very low birthweight infants who do not have a chromosomal variation, according to a study by a National Institutes of Health research network.

Link between Child Care & Academic Achievement & Behavior Persists into Adolescence
Teens who were in high-quality child care settings as young children scored slightly higher on measures of academic and cognitive achievement and were slightly less likely to report acting-out behaviors than peers who were in lower-quality child care arrangements during their early years, according to the latest analysis of a long-running study funded by the National Institutes of Health.

Most Young Women with Menopause-like Condition Retain Store of Eggs
Contrary to what researchers had previously believed, most young women and girls who experience a menopause-like condition called primary ovarian insufficiency still have immature eggs in their ovaries, according to a study by scientists at the National Institutes of Health.

Banking on Research Futures
​The Institute recently expanded efforts and oversight of its Brain and Tissue Bank for Developmental Disabilities to study autism and other intellectual and developmental disabilities.

Hereditary Condition Causing Limb Weakness Traced to Gene for Rare Disorder
A gene that causes a fatal childhood brain disorder can also cause adults to develop peripheral neuropathy, a condition resulting in weakness and decreased sensation in the hands and limbs, according to a study by researchers at the National Institutes of Health and other institutions. The study is the first to show that different mutations in the same gene cause the two seemingly unrelated disorders.

NIH Appoints Alan Guttmacher Acting Director of NICHD
Alan E. Guttmacher, M.D., is the new acting director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), one of the 27 institutes and centers that comprise the National Institutes of Health.

In Memory of Eunice Kennedy Shriver
​In Memory of Eunice Kennedy Shriver The driving force behind the NICHD’s establishment and an unrelenting advocate for those with intellectual and developmental disabilities died Tuesday, August 11, 2009, at the age of 88.

Delay in Diagnosis of Menopause-like Condition in Young Women Linked to Low Bone Density
Women and young girls who experience delays in diagnosing a premature, menopause-like condition face increased risk of low bone density, according to new research by scientists at the National Institutes of Health. A delay in diagnosing the condition, called primary ovarian insufficiency, may make women more susceptible to osteoporosis and fractures later in life, the researchers concluded.

Gene Scan Shows Body's Clock Influences Numerous Physical Functions
The pineal gland -- integral to setting the body's sleep and wake cycles -- may be involved in a broad range of bodily functions, according to a study by researchers at the National Institutes of Health and other institutions.