Pediatric Injury: For Patients and Consumers
Services, Resources, and Support
Resources Related to TBI
- Academy of Cognitive Therapy (ACT) is a non-profit organization dedicated to cognitive therapy and ensuring that cognitive therapists have appropriate training. The ACT website, at http://www.academyofct.org, provides information about cognitive therapy and includes a function to find a certified cognitive therapist in your area.
- American Academy of Physical Medicine and Rehabilitation (AAPM&R), http://www.aapmr.org, provides information about conditions and treatments, as well as ways to find local rehabilitation services.
- American Occupational Therapy Association, Inc. (AOTA), at http://www.aota.org, provides a variety of information about occupational therapy services. AOTA’s Consumer section, at http://www.aota.org/Consumers.aspx, offers tip sheets as well as other helpful tools.
- American Physical Therapy Association (APTA) is the leading U.S. organization for physical therapists. The APTA website, at http://www.apta.org, provides a variety of information about physical therapy, including how to find a physical therapist in your area.
- American Speech-Language-Hearing Association (ASHA), at http://www.asha.org, is a national non-profit organization that seeks to make effective communication accessible and achievable for all people. ASHA helps to ensure that speech-language pathologists, audiologists, and other speech-language-hearing professionals have the proper education and training and aims to provide speech, language, hearing, communication, and cognitive assistance to all those who need it, regardless of whether their deficit is the result of TBI or another condition or injury. A speech-language-hearing professional can be located through the ASHA website at http://www.asha.org/findpro.
- Brain Injury Association of America (BIA) is a non-profit organization dedicated to assisting those who have experienced brain injury and their families. The BIA has chapters and offices in every state that might be able to help users find specialists to assist with rehabilitation. Contacts for each state office are available through the BIA website at http://www.biausa.org.
- Brain Trauma Foundation (BTF), at http://www.braintrauma.org/, works to improve the lives of TBI patients worldwide. The BTF offers a variety of information on critical care guidelines, treatment options, and the latest research on TBI.
- The Department of Health and Human Services Office on Disability, at http://www.hhs.gov/od/, oversees the implementation and coordination of disability programs, policies, and special initiatives pertaining to the health and health-related programs for persons with disabilities in the United States.
- National Center on Physical Activity and Disability (NCHPAD), at http://www.ncpad.org/, is an information center that offers resources on a variety of disabilities and conditions.
- National Institute of Neurological Disorders and Stroke (NINDS), part of the NIH, supports and conducts research on issues related to neurological conditions, including brain injury. The NINDS website, at http://www.ninds.nih.gov, offers information on a variety of neurological issues. NINDS also provides free publications on TBI at http://www.ninds.nih.gov/disorders/tbi/pubs_tbi.htm.
- National Institute on Disability and Rehabilitation Research (NIDRR), , located within the U.S. Department of Education, provides leadership and support for a comprehensive program of research related to the rehabilitation of people with disabilities, including those with TBI.
- National Resource Center for Traumatic Brain Injury, at http://www.pmr.vcu.edu/programs/neuropsychology, funded through the NIDRR, U.S. Department of Education, provides relevant, practical information for professionals, persons with brain injury, and family members.
- National Rehabilitation Information Center (NARIC), at http://www.naric.com, provides information and resources about rehabilitation options nationwide. A variety of resources on TBI are available at http://www.naric.com/public/tbi.cfm?id=9.
- NIH National Library of Medicine Medline Plus database provides information, including links to resources and services, about a variety of topics, including TBI, at http://www.medlineplus.gov. For more information on TBI, visit http://www.nlm.nih.gov/medlineplus/traumaticbraininjury.html.
- NIH National Library of Medicine provides access to millions of scientific journal articles through its PubMed database. Visit http://www.pubmed.gov and use “traumatic brain injury” or “TBI” as keywords to search for relevant articles.
- TBI Program at the Maternal and Child Health Bureau of the Health Resources and Services Administration, at http://mchb.hrsa.gov/programs/traumaticbraininjury, conducts expanded studies and establishes innovative programs and services for those affected by TBI.
- U.S. Social Security Administration, at http://www.ssa.gov/pgm/links_disability.htm, offers information related to disabilities, including TBI, and disability benefits.
Pediatric TBI Resources:
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.
Last Updated Date: 11/30/2012
Last Reviewed Date: 11/30/2012