Services, Resources, and Support
NICHD OI Program
Information about the various types of OI, as well as basic research and ongoing clinical trials conducted by the NICHD, is available online. The NICHD conducts free testing for eligible individuals.
A voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation’s mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.
Founded in Dundee, Scotland, in 1968, the Brittle Bone Society is a U.K. organization providing support to people affected by osteogenesis imperfecta.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.