Osteogenesis Imperfecta: For Patients and Consumers

General Information

• American Academy of Orthopaedic Surgeons (AAOS) OrthoInfo: Osteogenesis Imperfecta
• MedlinePlus, National Library of Medicine: Osteogenesis Imperfecta
• National Human Genome Research Institute (NHGRI): Learning About Osteogenesis Imperfecta
• National Institute of Arthritis and Musculoskeletal and Skin Diseases: What Is Osteogenesis Imperfecta?

Services, Resources, and Support

NICHD OI Program

Information about the various types of OI, as well as basic research and ongoing clinical trials conducted by the NICHD, is available online. The NICHD conducts free testing for eligible individuals.

• Read more about the NICHD OI Program.

Osteogenesis Imperfecta Foundation

A voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation’s mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

Brittle Bone Society

Founded in Dundee, Scotland, in 1968, the Brittle Bone Society is a U.K. organization providing support to people affected by osteogenesis imperfecta.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.