Neural Tube Defects (NTDs): For Researchers and Health Care Providers

Information About Neural Tube Defects Research

• Centers for Disease Control and Prevention (CDC):
  • Spina Bifida Program Overview. (PDF - 341 KB) This document summarizes the work of the CDC’s National Spina Bifida Program at the National Center on Birth Defects and Developmental Disabilities.
  • Spina Bifida: Research. This webpage contains information about CDC research on spina bifida; links to abstracts for peer-reviewed publications; and other resources, such as data and statistics.
  • Folic Acid: Research. This webpage contains information about CDC research on folic acid, including current guidelines, research, and links to abstracts for peer-reviewed publications.
• NIH, Office of Dietary Supplements: Dietary Supplement Fact Sheet: Folate. This webpage provides information on folate, including recommended dietary allowances and food sources.
• U.S. Preventive Services Task Force: Folic Acid to Prevent Neural Tube Defects This site contains links to the latest recommendations on use of folic acid.
• Medical Home Portal: Neural Tube Defects—Treatment & Management. This is a comprehensive guide to treating and managing spina bifida and includes links to many resources, including medical specialists, clinical trials, and substantial documentation.
• Medical Home Portal: Neural Tube Defects—Practice Guidelines & Helpful Articles. This page contains links to relevant articles.
• American College of Obstetricians and Gynecologists (ACOG): ACOG Practice Recommendations for Neural Tube Defects [Abstract]. Provides recommendations for health care providers on prevention, screening, and in utero treatment of neural tube defects.
• The Spina Bifida Association. Provides resources for health care providers, patients, and their families. Among these resources are the following:
  • The Spina Bifida Association: Current Research
  • The Spina Bifida Association: Published Research
  • The Spina Bifida Association: Spina Bifida Clinics
  • The Spina Bifida Association: Spina Bifida Latex List

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.