Klinefelter Syndrome: Patients and Consumers
- American Association for Klinefelter Syndrome: Information about the condition, current studies, and connections to support groups
- Mayo Clinic's website describes how to prepare for your first appointment to check for KS. It also summarizes symptoms, diagnoses, treatments, and complications.
- InterNational Council on Infertility Information Dissemination, Inc. (INCIID): Infertility: Male Factor
- Klinefelter's Syndrome Association (UK)
- KS&A is an organization that provides information, education and support for individuals with KS and other sex chromosome variations, including Trisomy X (47,XXX) and XYY syndrome. The website features downloadable brochures, FAQs, and other resources on topics related to sex chromosome variations. Visit http://www.genetic.org or call 888-999-9428 (303-999-9428 if outside the United States). For those with a prenatal diagnosis, KS&A has developed a collection of specific information for prospective parents at http://www.genetic.org/Portals/0/Public/Brochures/Prenatal_Diagnosis-VI_Letter.pdf (PDF - 350 KB).
- National Library of Medicine?MedlinePlus: Klinefelter syndrome
- National Human Genome Research Institute: Learning about Klinefelter syndrome
- In conjunction with the clinical trials it conducts, the NICHD provides counseling and research for patients with suspected or diagnosed genetic disorders. Patients and their families receive comprehensive evaluations, counseling, and risk assessment. Patients may be referred to Dr. Margarita Raygada at email@example.com or call 301-451-8822.
- The Hormone Foundation: English/Spanish fact sheets
- The XXYY Project: Males with extra X and Y chromosomes
Organizations, Support, Services
Resources on Infertility and Other Health Conditions Linked with Klinefelter Syndrome
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.
Last Updated Date: 01/02/2013
Last Reviewed Date: 01/02/2013