Services, Resources, and Support
Our Fragile X World
This website is maintained by a community of fragile X families and researchers; it provides information about fragile X syndrome. Information is also collected for periodic surveys.
National Fragile X Foundation
This foundation aims to provide information and advance research toward improved treatments and a cure for fragile X and its associated disorders. The site also has information about genetic counseling and finding a genetic counselor.
FRAXA Research Foundation
This foundation, which is run by fragile X families, aims to accelerate progress toward effective treatments and a cure for fragile X by directly funding research. It supports families affected by fragile X and raises awareness of the condition.
Worldwide Education and Awareness for Movement Disorders (WE MOVE)
The WE MOVE website maintains information and resources about more than 20 movement disorders.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.