General Information about Fragile X Syndrome
Services, Resources, and Support
FRAXA Research Foundation
This foundation, which is run by Fragile X families, aims to accelerate progress toward effective treatments and a cure for Fragile X by directly funding research. It supports families affected by Fragile X and raises awareness of the condition.
Toward a cure … What’s new?
National Fragile X Foundation
Our Fragile X World
This foundation aims to provide information and advance research toward improved treatments and a cure for Fragile X and its associated disorders. The site also has information about genetic counseling and finding a genetic counselor.
This website is maintained by a community of Fragile X families and researchers; it provides information about Fragile X syndrome. Information is also collected for periodic surveys.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.