Cushing Syndrome: Researchers and Health Care Providers

For Researchers

• American Academy of Family Physicians
  The site has an article describing clinical manifestations of Cushing’s syndrome focused on Cushing’s disease and describes diagnostic steps.
• Cushing’s Support and Research Foundation
  The foundation raises and distributes funds for research.
• ERCUSYN
  This is a European register on Cushing’s syndrome.
• Jackson Laboratory
  This repository has a JAX mouse model useful for studying corticosterone excess and its profound developmental effects.
• National Center for Biotechnology
  This NIH center provides resources about various aspects of Cushing’s syndrome, including research tools.
• Orphanet
  This site maintains, updates, and develops free information about rare diseases and orphan drugs based on information from international sources.

For Health Care Providers

• Cushing’s Support and Research Foundation
  The foundation has a medical advisory board that offers medical information from prominent sources. The site includes a section on children.
• The Endocrine Society
  This professional organization has free clinical practice guidelines.
  • Read "Diagnosis of Cushing’s Syndrome" (2008) (PDF - 511 KB)
  • Read "Pituitary Incidentalomas" (2011) (PDF - 2.8 MB)
• NIH Consensus Development Conference: Management of the Clinically Inapparent Adrenal Mass ("Incidentaloma") (PDF - 563 KB)
  February 4-6, 2002, Bethesda, Maryland.
  To better understand the diagnosis and treatment of pituitary incidentalomas, the NIH engaged in a rigorous assessment of the available scientific evidence. The findings are outdated now, but may be reviewed for reference purposes.
• The Pituitary Society, European Neuroendocrine Association, and Italian Society of Endocrinology
  Article for clinicians. (Arnaldi, G., Angeli, A., Atkinson, A. B., et al. (2003). Diagnosis and complications of Cushing’s syndrome: A consensus statement. Journal of Clinical Endocrinology and Metabolism, 88(12), 5593-5602.)

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.