Congenital Adrenal Hyperplasia (CAH): For Patients and Consumers

General Information

• NIH Clinical Center
  • Facts About CAH (English) (PDF—752 KB)
  • Hiperplasia Suprarrenal Congénita (Spanish) (PDF—177 KB)
• Hormone Health Network
  The Hormone Foundation's Patient Guide to Congenital Adrenal Hyperplasia (PDF—71 KB)
• National Adrenal Diseases Foundation
  CAH: The Facts You Need to Know
• National Library of Medicine
  Medline Plus―Congenital Adrenal Hyperplasia

Services, Resources, and Support

• The Congenital Adrenal Hyperplasia Research, Education & Support (CARES) Foundation
  The CARES Foundation seeks to advance quality health care through support, advocacy, education, and research to improve the lives of the CAH community. The foundation issues a newsletter, maintains support groups, posts information about ongoing clinical research, and offers physician referrals.
  • Read about Getting Ready for School
  • Read Pregnancy and CAH: What Every Woman with Classical CAH Should Know
• The Hormone Health Network (previously known as The Hormone Foundation)
  The Hormone Health Network, affiliated with The Endocrine Society, maintains hormone-related health information for the public, physicians, allied health professionals, and the media. The network aims to serve as a resource for the public by promoting the prevention, treatment, and cure of hormone-related conditions through outreach and education. Of particular use to people interested in CAH is the Patient Guide to Congenital Adrenal Hyperplasia. (PDF—83 KB)

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.